AAOS Registry Program Blog

Spreading Sarcoma Awareness with Patient and Surgeon Stories

Jul 25, 2023 12:00:00 PM

Hand holding a yellow ribbon next to MsTR logo

July is Sarcoma Awareness Month. Few people can tell you that sarcoma is a rare cancer of the soft tissue and bone with over 70 subtypes. And even advocacy groups call it “a forgotten cancer.” But for the tens of thousands of Americans living with sarcoma, sarcoma isn’t rare: it’s a daily reality.

Sarcoma deserves recognition 365 days a year, not just during July.

Knowing that sarcoma requires various treatment options at various stages of discovery, the AAOS and the Musculoskeletal Tumor Society (MSTS) are working hard through the Musculoskeletal Tumor Registry (MsTR) to help clinicians and health systems track function, complications and outcomes in patients treated for sarcomas. The Registry fills a gap in current sarcoma care by focusing on quality-of-life and functional outcomes. As such, it is helping pave the way to find a cure for sarcoma.

We would like to share the patient and surgeon stories about sarcoma below.

If you would like to learn more about the MsTR and the role it plays in allowing surgeons to combine data from institutions around the country, click here.

MsTR Steering Committee Chair Dr. Miller and MsTR Program Manager Atusa Moreno were featured on the Sarcoma Insight Podcast (hosted by Izuchukwu Ibe, MD, and Elyse Brinkmann, MD) to discuss the Registry’s impact on sarcoma research and care. Listen to the episode, “Research and Data in Sarcoma Care - Musculoskeletal Tumor Registry” here.

Your support can help in our mission. To donate to the MsTR, email Atusa Moreno at amoreno@aaos.org.



Topics: Patient Education, Musculoskeletal Tumor

A Message for Our Readers

This blog was created by the American Academy of Orthopaedic Surgeons (AAOS) Registry Program as part of our commitment to improve orthopaedic care through the collection, analysis, and reporting of actionable data. Our purpose is to communicate with others in the orthopaedic field who share the same commitment. Watch for news alerts, quick tips, actionable checklists, best practices, and research findings posted to this blog. Whether you are a participating site in one or more AAOS Registry or thinking about joining the Registry Program, this blog will provide current and ongoing Registry updates and decision support.

The more interactive you are, the greater the value shared. Visit us at www.aaos.org/registries or speak with a Registry Engagement Associate at 847-292-0530.

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  • Tuesday, July  25, 2023 - Spreading Sarcoma Awareness with Patient and Surgeon Stories


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